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Welcome to Team Elliot's page! Elliot is a rad superhero who is dedicated to raising money to help support research for Tuberous Sclerosis Complex and epilepsy, one of TSC's devastating complications.  On this site, we provide details regarding Elliot's story, some basic information on Tuberous Sclerosis Complex and epilepsy, and notable updates on research and treatment options. We also provide a forum to donate to organizations dedicated to the treatment of people living with Tuberous Sclerosis Complex and those that research a cure for TSC.  

 

Elliot receives much of his treatment at The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex at Massachussetts General Hospital. Dr. Elizabeth Thiele has guided Elliot's care from the beginning and we are honored to work with her. Elliot also receives treatment under the care of Dr. Orrin Devinsky at NYU Langone Medical Center who is on the forefront of epilepsy management and treatment. The Tuberous Sclerosis Alliance is dedicated to research and treatment of Tuberous Sclerosis and improving the lives of those affected by TSC.

 

Incredible strides have been made in the treatment of Tuberous Sclerosis Complex in the six and a half years since Elliot has been diagnosed. These accomplishments demonstrate that the manifestations of TSC can be significantly quieted down and that a cure for TSC may one day become a reality.

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About Elliot

Meet Elliot. Elliot was born in April of 2012. Elliot has an amazing smile and an infectious laugh. Elliot loves to listen to music and dance. He loves to swim and he loves playing with his picture cards. Elliot loves to read Little Blue Truck and Chicka Chicka Boom Boom. True story-Elliot gives the world's best hugs. Elliot has Tuberous Sclerosis Complex. has

Contact

We would love to hear from you!  If you would like to contact Team Elliot, please fill out this form and the Captain will get back to you shortly. 

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